Percepção da qualidade de vida das mães de crianças com paralisia cerebral que utilizam o serviço de fisioterapia da APAE-Goiânia complexo II

Abstract

The functional dependence of the child with cerebral palsy (CP) seems to cause a physical and emotional burden on their families. The aim of this study was to analyze the perception of quality of life (QOL) of mothers of children with cerebral palsy using the physiotherapy service APAE-Goiania (Association of Parents and Friends and exceptional) of complex II. Study participants were 30 mothers who responded to the questionnaire WHOQOL-Bref. Data were analyzed and displayed in percentage, the higher the percentage the better quality of life. The results were: physical domain, 47.02%, psychological, 58.75%, social relationships, environment and 65.83%, 50.63%. The analysis showed that perceptions physical, and environmental are as unsatisfactory, since social relationships have a higher percentage. The overall percentage of self assessment of QoL of 59.58% shows that there is negative points that contribute to a poor quality of life, but there are also positive aspects that favor the QOL of these mothers. Indeed, it is very important the multidisciplinary support in the case of physical therapy treatment of children with CP, which are conducted in APAE, presents a vision not only in the rehabilitation of the patient but also the quality of life of caregivers in question. Become necessary support facing the caregivers as preventive and therapeutic actions, within institutions to provide the incentive to improve the quality of life. It is worth noting the need for more research, given that few investigations are aimed at this issue facing caregivers of special children.